Day 40 : Florian outpatient at home

Florian is now back home, outpatient and his next chemo phase. We drive him in Rochester every Thursday to get his spinal tab and get some of his chemo. He learned how to make his own injections and has now a quite impressive list of drugs he needs to take every day. It is like there is a pill for everything.

As far as fighting cancer, Florian seems to do amazingly well. No bad cells and blood count is stabilized. Problem though is now all the side effects. Florian went through a lot of pains pretty much everywhere in his body and the fact that he is exhausted does not help in finding the energy he normally has to fight with his very personal sense of humor. He lost his interest for good food which is somewhat unusual for him...

Last week was relay for life and we would like to thank, again, all the individuals who contributed. Florian was just amazed by all that support. The big day was on Friday and Florian really wanted to be part of it. Unfortunately, the spinal tab he had the day before had literally drained all his energy and he could not wake up to attend the " survivors event " that he really wanted to go to. At 10 PM, though, something sparkled in his head and he decided he had the energy to make it !

Also, Amaury created his own walking team. He stayed awake with Kathy all night. A proof that, when it comes to his brother, he can do amazing things. Thank you all for having been part of that team.

 

Anyways, things right now are a little bit like roller coasters. Highs and lows. Big accelerations in-between and no idea what is going to be next. Things probably need to set-up in this new phase. Raphael came back from North Carolina so the whole family is together. Today, Florian is feeling really good. Maybe, things are setting up.