It looks like we are inventing a new calendar around his chemo schedule!
Tonight Florian is at the movie. He already went on Saturday . It was a huge step. He came back completely exhausted and laid down in his bed immediately.
Tonight Florian is at the movie. He already went on Saturday . It was a huge step. He came back completely exhausted and laid down in his bed immediately.
In general, he is still really tired, without energy and really weak. For example today he slept up to 5pm: reason why he was ready to go to the movie.
He is in a 2 weeks phase where he doesn’t have any chemo at home. Just once a week at Strong by IV. No more chemo by injection or by mouth. After those 2 weeks we will restart with the daily injection and medication.
The side effects are still there: the more obvious for Florian is the loss of appetite: he prefers vegetables than meat or sweets. I have to propose him 5000 things in a day to find something he would consider to eat. This means he is still losing weight and is really preoccupied by his “shaped belly” disappearing.
His blood count is still going down but his hair are growing back slowly.
He is still on track according to the protocol but in the meantime he needs blood transfusions again as his red cells count is really low. This explains why he is so weak. It looks like that this coming Wednesday he will need again to have more blood.
Florian was really excited last Thursday when the nurse used for the first time his “Mediport” for his chemo. He was at the same time a little reticent and trilled to do it and finally it was not really such a big deal: really easy, just a needle going through his skin in the port.
He was having a chemo that can be bad for his heart. Last time he had a small reaction and was not feeling really well. This time to avoid any risk of this side effect (that can be really bad) they gave him Benadryl (anti-histaminic) to avoid the potential allergy. As soon as the nurse injected the medication in his “mediport” he started sleeping like a baby. He continued to try to speak but couldn’t finish his sentence or his words. It was like a slow motion. When we asked him regularly to see if he was doing well with the chemo, he was saying that he was not sleeping. After 4 hours, he started to wake up and did not remember telling us that he was well awake. It is incredible the effect of those medication. We laughed a lot with the nurses…
Amaury and his girlfriend Kathy made a point today to give blood. Nice ! It will compensate for us (old people) who are not allowed to do it because we lived in Europe for too long.
On this coming Wednesday and Friday we need to go back again at Strong for Spinal chemo and IV chemo. We hope he will be able to stay like he is now: not too much headache.
suis pas sûre de bien comprendre ton "It will compensate for us (old people) who are not allowed to do it because we lived in Europe for too long".
ReplyDeleteSavent-ils qu'il n'y a plus ni peste ni choléra en Europe depuis longtemps ?...
Blague à part...On pense beaucoup à vous et on vous embrasse bien fort...
Anne.
J'ai aussi été choqué par la remarque à propos de vos dons de sang refusés. Mais bon quand on sait qu'en Belgique, ils ne communiquent pas entre la Croix Rouge francophone et la Croix Rouge Néerlandophone (Je dois moi-même gérer les durées entre deux dons car je suis inscrit dans les deux camps), on ne va pas s'étonner.
ReplyDeleteCela mis-à-part, je suis admiratif du courage de Florian dans son combat contre sa maladie. Pour l'encourager, j'ai un excellent ami hockeyeur, qui âgé de 55 ans a été diagnostiqué avec un cancer du poumon et on ne lui donnait que 6 mois à un an de survie. Aujourd'hui après sa 4éme série de chimio, les taches ont disparu des poumons et selon les médecins, il est en rémission. Comme quoi, il faut toujours se battre et garder l'espoir!
Va-y Florian,tu vaincras cette saloperie.