We are just coming back from Rochester. His chemo was cancelled today because his level of white blood cells was too low. He had a transfusion to try to reach the level required to give him the next state of his chemo. This will seemingly be next Thursday with the 4 days spent at the hospital. We got results for his bone marrow biopsy: everything is normal and they aren't finding any trace of leukemia. Like before they always need to continue the chemo since there could be "invisible" chemo cells that could restart the process later if the treatment stops now (for the people of the medical world I apologize for the simplistic explanation.)
Regarding his latest updates, and since he is feeling much better, he decided to go to NYC this weekend, he has been waiting for 3 months. He wants to go see his friends in NYC but hasn't had the medical authorization to go. He is pretty happy, we have to say he asks the doctors (pretty much every time he sees them) if he can go and this time they couldn't refuse. Of course, with the change this means his plans to go to Comic Con in NYC with Jerome Thursday and Friday fell through since he will be in the hospital. We learned not to make plans in advance and to take a chance if something is available.
He is adapting pretty well and accepting the last minute changes. As he says, he is the most patient one of the family. I don't want to contradict him and will try to follow his example.
For now Florian is feeling great, we went shopping when coming back from Rochester. To remind you, he lost a lot of weight, (he asks me regularly if I am not jealous of his amazing diet, me who gains kg while he looses them) which means his pants are too big. Furthermore, he is more sensitive to cold which means that he needed shirts. (clothing he rarely put on before apparently).
At Amaury's surprise (the one out of the 3 boys who care most about fashion), Florian bought "skinny" grey velvet jeans, shirts that his dad will steal from him, and finally shoes. We pretty much bought everything in the store. He made sure to explain to the cashier that he only goes shopping once every 5 years. He finds himself very professional, and is proud of his Christmas sweater as he calls it. I have to say it suits him well but it's a change from his usual slippers, sweat pants and hoodies.
Other changes: he is eating ice cream, he who never liked ice cream and got a bottle of water when going to Peaches and Cream (the area's ice cream shop). He is coming back from Wall-Mart to buy some because we ran out.
In conclusion everything is going well, it's great to see him like this. I hope he is going to have a great time in NYC and take advantage of it before his next chemo on Thursday.
Hey Gollier/Lodewijck friends ! I am of course following every post of yours and although not present (because of obvious thousands of miles of distance), I am very happy to see that things are going pretty well. I am also very jealous of the weight loss but what can we do Nathalie !!! we see an Icecream and we already gain a couple of pounds.... isn´t it ! Still waiting for the whole family to come and visit me in Brazil. I think I will be visiting NY sometings in the next six months, In that case, I hope to see you of course.
ReplyDeleteAll the best Florian... big hug !!!
Michel
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