DAY 22  Chemo Day: Very interesting day!!

Morning:  UP
We are preparing everything to be able to go home on Friday (tomorrow).  The nurse explained to us how to flush the IV.  Florian could do it himself and did way better than I did: he got a A+ and I barely passed.  I was so stressed to do something wrong.
They also explained to us about the nurse coming at home twice a week.  They promised me they would give me a spreadsheet with all the medications he has to take every day.  I was relieved because I couldn't remember any of the names of those 5000 medications.
All is very exciting and going really well.

Afternoon: DOWN
Chemo is scheduled for 3:00 pm.  A nurse came to give him some medication (Caspo??) in his IV.  She left, I was on the phone for a meeting and he told me that he was not doing well.  I jumped to his bed, he was shivering, sweating and having a huge headache.  I rushed in the corridor to call for help, they arrived and stopped the IV.  He was doing a little better instantly.  Within minutes there was 10 people in his room to try to understand what happened. They did the full set of tests: X ray, blood tests in both arms at the same time, heart, … Everything. They did not give us a clear explanation up to now of what exactly happened.
We are told that he couldn't go home anymore on Friday but perhaps on Monday. What a bummer!  It was quite disappointing to say the least.

Late Afternoon: EXHAUSTING
We decided to go outside for a walk, it was 92F outside, full sun.  Florian wanted to eat as usual. We went to Cam’s Pizzeria, a walk of about 40 min back and forth.  Quite a challenge for Florian but the pizza he got was the reward and the goal. Nothing could stop him.  He felt so good to be able to choose himself his food and not by phone.  He hasn't done it in more than 5 weeks.

Early evening: UP
We came back from our walk and ran into his doctor. She told us she had good news! The blood results from Day 8 were awesome. They did not find any of those “bad” cells in his blood on day 8 which is above the average (I simplified a lot, sorry for the professionals). She was really enthusiastic and told us that he could go home tomorrow. The medication that caused the reaction was not even needed, she was not too happy they gave it to him either because he is under a pediatric protocol and not for adult. So good news.

Evening: CRAVING
We got back to his room and Florian suddenly asked me for lobster, shrimp or crab.
I jumped in my car go get to Wegmans right away.  For sure I found what I needed, what would I do without Danny Wegmans!!! It was too late for the lobster but I got the crab and the shrimp.  He mentioned clearly to me that he did not want the crab in a can but it had to be fresh!! 
I came back and he was sleeping like a baby, I guess the emotions of the day were the reasons. 

9:00pm CHEMO
Everything went well, he chatted with the nurse as usual for at least 30 min. After Steven (the cleaner) came to talk about Xbox games (I am always lost when he comes in and I never understand a word of their jargon).
The chemo was barely done that he started his crab and shrimps.  He appreciated but would have preferred a lobster!!  

We will see what will happen tomorrow. We never know.

Edit: It's now midnight and he just ate microwaved fish sticks which were apparently a delight. He also managed to sneak beef jerky while they were changing the protective plastic for his IV. Note that EVERYONE in the room has to wear masks while this is happening, and they are incredibly careful to make sure nothing goes wrong, yet he managed to eat his jerky while wearing his mask.