Sunday, May 12, 2013

English version of the post from 11th of May for all of Florian's friends in the US.

Lately we have received so many emails and words of encouragement that it has been hard for us to respond to everyone. So we decided to create a blog and keep everyone updated with news as soon as we get them.  Don't hesitate to leave any comments, everyone in the family would greatly appreciate it.

First of all a great thank you to everyone for all the support and help.

Florian has a great moral right now:
He finally got to open up his birthday present, Robert Barathean's war hammer and is ready to fight cancer.
There are good reasons for his outfit:
- The helmet is to avoid getting hurt if he falls ( he is a bit weak at the moment). He could bleed a lot if something goes wrong and he gets hurt.
- The mask is to avoid getting sick from others, pretty self explanatory. He only needs to wear his helmet and mask when he goes outside his room, most of the time he isn't wearing them since he is just chilling in his room playing video games and such.

If you have any ideas for cool bumper stickers for his helmet he is all ears. For now he wants flames on both sides, but we are open to adding other things.

He has to try to exercise as much as he can, so he walks around as much as possible and even goes to the gym which is right next to his room.

He has also been eating well and is changing his diet around a bit more lately but he isn't ready for a thanksgiving dinner quite yet.
For now he isn't feeling nauseous and isn't having other problems because of the chemo, they are giving him meds to make sure he doesn't start feeling nauseous. However he won't be able to avoid the loss of hair.

On a side note for those of you who want to give blood and bone marrow, the doctors have clearly said no for blood. They don't want to give him blood from people who would potentially give a bone marrow because if they did he could start producing anti bodies which could potentially cause problems if he later needs a bone marrow transplant. If he does need a transplant which is not a sure thing at all, we will only know towards the end of the treatment which could be a a few years.

For those who want to better understand his illness, we were told the following website could answer a lot of your questions, he has ALL: Acute Lymphoblastic Leukemia.
http://www.lls.org/?gclid=CJidtJ20j7cCFQYaOgodWlUA4w#/diseaseinformation/leukemia/acutelymphoblasticleukemia/

If you have any other questions, feel free to comment we will try to keep a lookout on the blog and keep it updated as best we can.

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