Florian was at Rochester starting on Wednesday. Same routine: spinal tap and chemo for 24 hours then flushing it for 24 hours until when he hits the 0.1 coveted number.
This time his doctor is here the whole week and week end. She promised that she would closely follow him to be sure he could leave as soon as possible. She wasn't lying, she came in his room at least 3 to 4 times a day and last night she stayed until 2 a.m. to take care of another urgency. Today she is there again the whole day.
This time Florian's moral is much better, he is keeping his sense of humor even though his usual symptoms are back: headace, nausea, throwing up, stomachache,....He will train on the bike, eat a bit (better than nothing). He is proud to be gaining muscle again, according to him he is noticing forms near his abs, especially now that he no longer has a one pack.
At least this time the first two days were entertaining because there was a few adventures.
As always he started his chemo with his pH higher that 7. Usually this comes with the few bicarbonates iodine (I have no idea if this is actually the right thing, I am just guessing by translating) that he receives as soon as he gets there. This time they stayed at the same level for 24 hours, they had to double the dosage to get there.
Next, after a few hours of methotrexate, he realized that all the tubes for his infusion were disconnected. Because the tubes were open his blood and the chemo, which is a yellow glowing liquid were dripping on the floor. At first he didn't really understand. We called the emergencies and nurses who arrived quickly in numbers. Florian didn't stop laughing and joking around while all the nurses were busy around Florian. Apparently a chemo spill is a big deal. You must not touch the chemo: Florian had it on him and his clothes. After that they had to send the bag of chemo to reconnect the tubes. A specialist had to come because this was chemo and not everyone is able to handle this, this took three hours. They opened an investigation to understand what happened: apparently one of the tubes wasn't properly connected. We talked to his doctor that night and she was not very happy to hear what happened.
The next morning, Florian stayed in his bed because he was pretty tired. All of a sudden he got up and told me that his new chemo was dripping on him. He was actually thinking he was sweating but his found out his chemo was dripping his arm, he checked and noticed that it was a bit too yellow. This time the needle that was in his catheter got removed and once again chemo was dripping on his bed. Once again every one was on red alert to clean up everything. The problem is that he can't use his catheter for his infusion but has to have a intravenous (no clue if that's right? intravien?) in his arm which was not pleasant. Once again this took more than 2 hours to put everything back in order. Over all his doctor was once again pissed and everything was delayed by 5 hours: not a big deal for Florian but visibly he can't have chemo in his body for too long.
All these events attract people, they all talk about Florian stories and come talk to him for details. Florian answers their questions and they are all so happy to have their "Florian time", the nurse say "Yes outside their is a long waiting line that are waiting to see him."
Now we are waiting to see if his methotrexate level lower as normal and at what speed,
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